Celiac, Lupus, and RA together?
This will be long. If you have time to read and respond I really appreciate you!
I have been previously tested for Celiac by colonoscopy/endoscopy and blood work. During this time I was barely able to eat anything at all for months. Sent to ER for malnourishment due to severe intestinal pains, stomach pain, and severe nausea along with very bad restroom issues all day long. It came up negative. I lost 30lbs ( lowest weight was 90 ish) and chunks of hair on my head, and black bags under my eyes etc… I eliminated gluten from my diet and was drastically better for a bit. I then developed a dairy allergy then a corn allergy and now I am almost certain a mushroom allergy.
Few months go by and I have clicking and popping in my joints. This progresses over time to now when I have flair ups I am severely fatigued, headaches, joint aches (ankles, wrists, knees, base of scalp, elbows, jaw) , pains, and swollen lymph nodes. I have been tested for my ANA (auto immune pathogens) and it’s positive. Lupus test is positive. RA test is positive. So I was sent to a Reumotologist for further testing. He said he would be almost 100% certain I have Celiac and when I was tested I wasn’t taking in enough gluten to even have an accurate test result. That being Celiac is most likely triggering all these other auto immune responses. He says I need to assume I have it and be very careful to never eat gluten. He is the 2nd doc who has said this to me.
Tomorrow I have 28 vials of blood being drawn. 28!! Like holy cow!
My question is who thinks my docs response to me having Celiac may be closer to being accurate? I kinda have felt this way for a while.
Also, 28 vials y’all is enormous for my tiny 110lb 5’4 body. How am I going to feel after this and any way for me to prep before hand? I know stay hydrated.
Has any one else gone through being Celiac, Lupus, and RA together?
Thank you for reading! ??☕️