I do not have the celiac gene

Question

I was just diagnosed with Hashi’s last month, and am still learning how to approach treatment of it. I know that 85% of Hashi’s patients improve on a gluten-free diet. However, according to my 23andMe DNA testing, I do not have the celiac gene. If you don’t have celiac disease, will going gluten-free still help with your Hashi’s symptoms? (I do have the MTHFR gene if that makes any difference.) Thanks in advance for your advice!

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Dyan 3 years 45 Answers 904 views 0

Answers ( 45 )

  1. Not sure about that 85% figure. I have been off gluten for a year.. and dairy.. and soy.. It all depends on your body. You may need to do AIP which is no grains, no seeds, nuts, etc. I have been digging around for my root cause for 12 months and still am unsure, but getting closer. At least my Thyroid hormones are almost optimal. Good luck in your search.

  2. Thanks Thomas! I believe I got that figure from Dr. Wentz’s book, but it might have been somewhere else. Glad to hear your thyroid hormones are close to optimal. If you’re able to get them to an optimal level through diet, can you go off of the meds? Or are you not on meds to begin with? I’m hoping I can treat this through diet, and avoid meds altogether.

  3. Oh no way Jose could I get my TSH T3/T4 where they need to be through diet. I am on a boatload of Nature-Throid for that.
    Diet is what I hope can get my antibodies down with. I have been strict with it, but it didn’t help, so AIP is the last resort as far as diet.

  4. So, diet only helps with the antibodies, and not with the TSH, T3, and T4? I didn’t realize that. Still trying to figure all of this out…

  5. Love the name of your coffee shop, BTW! 😉

  6. I suppose diet and exercise might have some effect on hormones…. People really vary a lot. My TSH a year ago was 16.. Now it’s 1.5. It’s all from Nature-Throid.. I don’t see it as a med, but more of a hormone replacement.
    It can easily take 6 months or a year of trying things to get on the right path. It takes a lot of reading and testing things.. discipline… a good doctor. The groups really help.
    Oh the coffee shop, thanks! Going AIP means I have to quit coffee… Going to be hard considering I have to taste it for work… I will have to spit it out..

  7. We have to avoid any foods that cause us inflammation. A doctor can run a blood test to see what foods you are allergic to. We are what we eat. Eating properly can help!

  8. Taking 250 mcg of Selenium daily can help lower antibodies and help w t4 to t3 conversion in addition to making the food changes

  9. Thyroid can be ” controlled “, but not the autoimmune. Gluten and 85% I never heard of.

  10. I’m on Armour thyroid. It works the best for me. I tried the synthetic, but felt awful and lost a ton of hair. 4 months ago I started the Whole30 way of life. It’s an elimination diet. Gluten, dairy, sugar and soy are my triggers I now know. I’m down 25 lbs and found out last month my Hashimoto’s is now in remission. I believe 100% that it’s a combo of diet, supplements, and thyroid meds that have gotten me to this point. It took a lot of trial and error over a 6 year period though.

  11. Some people can be gluten sensitive without having celiac. The best thing is to go off gluten for four months and see if you feel better or not. It takes that long for the gluten enzymes to be out of your system. It helps for some, but not everyone. Definitely not a cure though.

  12. The scientific answer is no it won’t help. The scientific studies they have done show it doesn’t work. No matter what others say that is the scientific response

  13. The 85% your quoting can’t come from a scientific source

  14. Dyan deNapoli did you think the 23 and me was a good value

  15. You may not have the Ceiac gene but you could be Non Celiac Gluten sensitive. I am, I react to gluten but I don’t have Celiac. This may explain it better. http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html

  16. Gluten affects your intestines and stomach it does not affect your thyroid

  17. Gluten molecules are indeed identical looking to thyroid tissue which can cause the body to attack the immune system if one has Hashimoto’s (which is autoimmune condition). . It can cause high antibodies in certain individuals which why doing an elimination can be helpful in lowering antibodies AND putting it into remission along with other factors. I agree with Elise Underwood Armstrong

  18. Christina Ernst Messmann can you post the molecules i don’t have them saved on my phone

  19. Dyan deNapoli- I am happy to message you lots of information and links to help you out. I refuse to keep going round and round with someone on this thread who can’t substantiate any of their views.

  20. If I was on my computer is blow up this feed with tons of links I have saved

  21. I still may

  22. This article is speaking of thyroid disease itself. HASHIMOTOS is in reference to the gluten. Thyroid disease is hypo or hyper. Hashi’s is AUTOIMMUNE. You can have Hashi’s without being hypo as the damage has not occurred to the thyroid yet which is why gluten free WOULD BE a great place to start! Could very well be a root cause!

  23. All you speak is woo you can tell in how you present your responses key words are everywhere but for anyone that questions gluten talk to your Drs since it’s obvious many that are adamant on gluten don’t see regular MDs but the quack Drs

  24. I’m going to bed and unfollowing since I’m not on my computer I don’t have all my links and I really could care less then to argue with people over gluten

  25. Ignorance, is truly a disease in itself. No further comment.

  26. Dyan – I was dx with hashis 19 yrs ago. I was on synthroid for 17 of those years and just kept getting worse even though my numbers appeared to be fine. Almost 2 yrs ago I switched to armour – that made a huge difference, but didn’t make me feel as “better” as I wanted it to. So I went to a functional med dx last March. Best thing I ever did. I did not test positive for celiac on traditional labs. However my dr ordered a huge array of labs that would show food sensitivities, saliva cortisol, stool tests for gut infections etc. He also ordered a casien IgG, wheat IgG and gliadan IgG. My results were sky high for all three. So I so not have a gluten and dairy allergy in the sense that I have an anaphylactic reaction – I have an allergy where my reactions were things like eczema, migraines, body aches, bloating, IBS like symptoms. I cut out gluten, dairy, sugar and other foods that I was sensitive to or would be considered inflammatory foods. It took about 3 months, but my migraines (I was having at least 3 a week) were completely eliminated, my eczema is gone…..etc. Best thing I ever did. There is definitely research out there from not only functional med resources but also traditional sources that with autoimmunity, decreasing inflammation is the key. Dairy and gluten are very inflammatory. Also even further with hashis, gluten proteins are very similar in structure to thyroid cells. This can send our bodies into a flare whenever we eat gluten. How much of one is certainly individualized, but it happens. 2 books that were wonderful for me were Isabella wentz’s “the root cause” and also one by Dr Datis Kharrazian “why do I still have thyroid symptoms when my lab tests are normal” awesome reads! Good luck!

  27. And I also have both mutations of the mthfr gene 🙂 I take the methyl forms of b12 and folate

  28. As a doctor I had put it…do you really need a reason to eat more healthy?

  29. It could help, it doesn’t always. I’m gluten free because I HAVE to be because I have celiac disease, but going gluten free is an all or nothing deal. It’s in a lot of stuff too, soap, medicine, shampoo, lotion, toothpaste, floss etc…

  30. I have been dairy intolerant my whole life. I recently cut out 100% dairy. I feel so much better. I have no issues with gluten and wheat.

  31. I don’t have celiac but have found removing gluten was the only thing that got the swelling off my knee. Just a warning, though, it took 5 months of following a strict gluten-free diet to see improvement. Good luck!

  32. Yes. It’s pretty important to be gf

  33. Gluten causes inflammation it’s pretty basic

  34. I have Hashi’s, not celiacs….but I gave up gluten and started eating organic and clean and lost 52 lbs and don’t feel like I’ve been beat with a bat anymore. The inflammation throughout my body is gone. Gluten causes me inflammation, end of story. Everybody has to do what is best for them.

  35. Here’s what I have found. Take gluten out of your diet for awhile. If you feel better, make it permanent. \n\nI would also suggest this book. After reading it I found that find information the correct supplementation helped me the most. \n\nThe bottom line is that everyone is different and you have to find what works for you!

  36. If you had livewello decode your 23andme results there is an area that shows gluten sensitivity.

  37. FYI… gluten works for some not all. DAIRY is more a culprit with hashi for gut issues and gluten issue as Dr explained it. “Consider gluten intolerance as a rainbow spectrum. Far left is the 3-5% roughly that have celiac.. in the middle is varying degrees of intolerance and far right the other 5% roughly that have no gluten response. Most people have some degree of intolerance and never have noticeable symptoms of it” with tgat analogy he gave me makes sense that Gluten increases inflammation in autoimmune disease because its an irritant like soy to system. You cant necessarily feel inflammation but it causes secondary responses. Personally i had improved gut issues but my main issue is dairy and yeasts and most gluten items have both in it anyway. I did aip faithfully for a while and It helped control ibs syndrome issues without medicines and I was very ill with it had celiac testing and scoped trying to figure issue.

  38. Thank you but I’m not interested in reading about wheat belly Chantal, rather the discussion was about intolerance vs allergy and using the correct language whether applied to gluten or not.

  39. There is definitely a difference between allergy and intolerance.
    My perspective is, that since most patients with autoimmune diseases have more than one, that similar issues cross between each disease. I’ve had Hashimoto’s (and only Hashimoto’s so far) for 6.5 years, and in all that time, Gluten has not been my issue. Of course, this does not mean that it is the same for someone else.
    I do suggest the AIP elimination diet, as it can help you get rid of foods than can cause inflammation or symptoms, and then after some time, you reintroduce the questionable to see if they truly cause you a problem or if it was just because of a leaky gut.

    Basically, you don’t need to have Celiac Disease to be allergic or intolerant to gluten, but that should be up to you what diet change will work best for your individual body

  40. There is a wonderful video on this topic on The Gluten Free Society website. As a nutritional therapist, this is one of the most common issues I am seeing, wether it is an allergy, sensitivity or intolerance to gluten, the impact on health is huge.

  41. Pm me Dyan

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