I had Celiac based on my symptoms.
I am so confused right now and I didn’t know who else to turn to. My doctor was convinced that I had Celiac based on my symptoms. I started researching it, and for the first time in my life, I felt like there was an answer for all my weird unexplainable symptoms. My blood test was negative (I had been GF for 6 months prior), but he was still convinced and did a scope to diagnose. I was on gluten heavy starting November 27th and had my scope December 27. GI called me earlier today. Biopsies were negative for Celiac.
Here’s the tricky part. He stated that he now believes my issues are motility related and suggested a drug called Domperidone (which is not approved and explicitly illegal to distribute in the US)! I am in shock that my doctor would suggest that I order something online from another country, unregulated, but what makes it worse is that there are serious heart related side effects which would require routine monitoring. In addition, in countries where it is legal there is a limit on duration of around 10 days from what I’ve read, but my GI is talking like this will be a long term solution.
I’m just so confused and angry and shocked all at once.