I just had to comment on a Mercola YouTube about Iron
I just had to comment on a Mercola YouTube about Iron (seven year old video) because he recently commented to someone and suggested a higher ferritin level than what we have learned from Morley Robbins research.
Never mind me, but airing out my frustration of all the misinformation out there and how it hurts people. Here goes…
Disappointed I bought into the STTM idea that ferritin needs to be, “Optimally, females often are 70-90 with ferritin (Janie’s is 80 when her iron is good); men tend to be slightly above 100.”
When first diagnosed w/hypothyroidism 10/2012, my ferritin was about 32, IIRC. I was actually fine then with ferritin, but STTM had me believe it was too low. I used to donate blood 2-3X=year before the ‘low’ ferritin level, so stopped donating blood.
So without guidance (Lord knows I tried)–and after seeing four doctors in one year to appropriately address my thyroid and ‘low’ ferritin issues. It’s as if no one wanted to address the iron issues–at all; at least the fourth Dr treated my thyroid properly, but still no guidelines/recommendations for the iron. So, I thought I was smart and began using iron. Never mind the brand, iron type, mg or qty, but after self-dosing about a year, 2013, I learned supplementing iron was not needed so stopped supplementing iron, late 2013, altogether.
I mention all that because my ferritin ended up at 123 ng/mL 15-150 , November 2013; then I had my biggest MS flare EVER (since diagnosed, 4/1990), spring 2014.
So after partial recovery of the MS flare, I learned various things about my health….
• Copper/Ceruloplasmin ratio
• low zinc
• active D (aka 1,25-D or calcitriol) was elevated/over lab range (was not previously tested, so who knows how long!)
• ACE was elevated/over lab range about two years (was not tested previously, so who knows how long it was ekevated?!)
• low RBC Mag, began testing 2014…
• B6 toxicity lab, 11/2015
• Apparently, “leading Cardiologists are STRONGLY advising their patients that the optimal Ferritin Functional Range = 20-50, and that levels above 50 CAUSE an uptick of heart events…” (All this based on a KEY study in Finland in 1992…)
So, I finally went back to donating blood and did so this August and October 2016, after realizing through 12/8/16 labs show high iron levels, about all the way around–even after donating 2X previously.
Not sure if my “MS” flare was really due to the B6 toxicity (and the detrimental effects B6 toxicity has); after all, I had numb feet for four years prior to the B6 toxicity lab, 11/2015. Wish I knew to ask for it sooner. Shame on the four doctors and three different neurologists who never tested it–or the one rheumatologist. I complained about the numb feet to all of them. I finally had the wherewithal to ask for the B6 lab (same for the 1,25-D lab!), thanks to Phyllis, another MAG member, and found out my lab results were due to issues with too much B6! One year later, 12/2016, feet still have numb issues. Sometimes it’s not as noticeable, but other times it definitely remains.
I will donate O+ tomorrow and will go every eight weeks to get the iron levels down.
Will always wonder what caused the MS exacerbation and the continued dominant arm/hand/fingers weakness/dexterity issues–B6 toxicity damage or because of high iron…