I was recently tested for Celiac Disease


Hi all. I was recently tested for Celiac Disease. My doctor told me that my blood work pointed at Celiac Disease but my Upper Endoscopy did not. I do not believe that my doctor went far enough into my small intestines during my Upper Endoscopy but I am not 100% sure about that.

I have not completely committed to my GF diet and I hate that my will power is so low but since I don’t get super sick with every gluten ingredient I touch, I risk it. And that is soooo stupid. My most common Gluten reaction is shortness of breath and exhaustion and at first I thought that was totally weird but I looked it up on a website and it is somewhat common.

So my question is, to the people that don’t have super awful reactions, how did you gather the will power to finally want to eat completely gluten free and feel better? I have packed on the pounds with this and I hate it. I want it gone. I need to feel better and lose weight. Any advice and tips are welcome!!

Thank you!

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Maddison 4 years 4 Answers 327 views 0

Answers ( 4 )

  1. Sounds like you may not be active celiac just yet

  2. I would say if your blood work suggested celiac, you have celiac. The endoscopy is not always accurate because like you said, it’s possible they didn’t reach it or there isn’t enough damage *yet* that has been done to your body. You need to find the motivation to be gluten free through the fact that whether or not a doctor diagnosed you properly, you do have an autoimmune disease. Positive blood work doesn’t usually lie. And if not treated, you are setting yourself up for a possible mediocre, painful life before a premature death. That’s how you need to find your motivation. Gluten free foods can pack in a lot of sugar and junk so it’s best to eat naturally gluten free Whole Foods. Think chicken, beef, turkey, pork, veggies, fruits, nuts. The cleaner you eat the healthier you will be and with some exercise you should fall into your natural, healthy weight. Goodluck to you! I hope you chose to go gluten free for the benefit of your body, mind, and long life.

  3. You can do a capsule that has a camera to look at your gut. I’ve done it. Very easy and better than the kind used a long time ago.

  4. My bloods were positive first endoscopy came back negative but it turned out they didn’t go far enough and take the right biopsies had to go back and have a second one came back positive

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