if they were able to diagnose via colonoscopy?
I had my first check-up with my GI since diagnosis yesterday. Not once crumb of gluten has entered this body intentionally and I’ve only had 2 “incidents” since going GF in early July. I was feeling pretty proud of myself and was going over all of the good things I’ve been feeling and noticing. I could see something in my GI’s face though. She was reluctant to tell me something.
Let me give you a little backstory. I was admitted to the hospital in June and was there for a week. My heart rate was 160 and my skin was bright red and flushed. They had no idea what was going on. They were testing me for things that I’ve never heard of and I was on continuous antibiotics for the whole six days. The day before release was when I had my endoscopy and colonoscopy. My G.I. was there every single day checking on me and she never gave me a clue that she thought it was celiac related. She told me at my visit yesterday that she was fairly certain it was when she did her initial assessment at the hospital and was happy that it wasn’t something more severe when they finally got the results of the biopsy back. Either way, the whole thing was traumatic for myself and my family because we had no idea what was going on until the biopsy came back. She basically explained that my body simply could not process the gluten anymore and was literally freaking out. This affected everything from my heart to my skin and everything in between!
Going back to my appointment yesterday, I had given permission for them to pull my records from my last colonoscopy (WHICH DID NOT INCLUDE AN ENDOSCOPY) from my previous GI in Pensacola from 2012. That was when they diagnosed me with possible UC because I had an ulcer in my colon and colitis consistent with UC, etc. So he said….
My G.I. was flipping through the records and stopped at the pathology report for the biopsy done. Blah, blah…”Celiac sprue”. Plain as day. In black-and-white. She is now pulling my records from my first colonoscopy when I was 18, 20 years ago. Two things. I had no idea that a colonoscopy could give you these results as well. I had so many questions but mostly I was upset. I was formally diagnosed this time via endoscopy, but what does that say for how damaged my intestines were in 2012 if they were able to diagnose via colonoscopy? Second, why the hell did my G.I. doctor in Pensacola not tell me? The last five years could’ve made all of the difference in the world. So many things have happened that were explained with the celiac diagnosis. I had no clue.
I am beyond upset, but the moral of the story is that if I would have taken my health into my own hands and requested records from the G.I. doctor, I would not have had to go through what I went through in June (and for the last 5 years…possibly more). I assumed that because he was the doctor that he knew what he was talking about. He took my gallbladder and told me I had UC. That was enough for me to assume that that was the extent of my problems. Man, was I wrong ?
I am not a person that allows myself to hold on to negativity. But, I simply cannot let this one go. I cannot make peace with this! I am just so very upset. Maybe it’s because the last five years have been hell on my body. I don’t know. Just venting, thanks for listening