I’ve been coping with being GF for about 4 years


I’ve been coping with being GF for about 4years, I struggle still and still get exposed to gluten, I’m so careful but it still happens… going out to eat used to be something I loved, dieting without low cal treats that taste good makes losing weight extremely difficult

I miss so many foods and it makes me so sad, it definitely affects my everything all social gatherings, outings, road trips, vacations, birthdays and holidays…. does anybody still get very sad about this like me? I wish I didn’t have celiac’s disease and I know so many people have it worse but it makes me very sad just the same

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Rosemary 4 years 16 Answers 555 views 0

Answers ( 16 )

  1. Oh yes, I feel you

  2. I can completely relate with you Rosemary Worster. I am a cook and baker and an extreme foodie who LOVED trying new restaurants etc.. I have been extremely depressed during this process. I have been gluten free for a year and although I have taught myself how to cook and bake gluten free, its just not the same. Every day seems like a struggle right now. I am so sorry that you feel sad. Have you thought about finding a new hobby? Sometimes a welcome distraction helps. I do find, once the weather cools off (I live in AZ) that hiking or walking makes me feel much better. It clears my head. I wish you all the best!

  3. I can relate. They had a surprise birthday party for me,which was really nice but I couldn’t eat any food or cake. They did buy me my own gf cake. I had to go home & get my food because it wasn’t held in a restaurant. Sometimes it is times like that it really gets to me.

  4. Yep, I feel you. At home it’s been no problem. I also haven’t really minded parties as I can usually eat before and find enough to eat while there and to some extent appreciate that Celiac’s keeps me from over eating in those settings. However, I love to travel and try new foods and it has totally dampened the experience for me. My boyfriend and I love the Food Channel and we would map out Guy’s stops on our trips- virtually all of them are no longer an option. And I miss beer. I don’t drink a lot in general, but I love craft beer. I love trying new flavors and kinds. I miss spring/summer craft beer festivals with taco trucks and funnel cakes. I know it’s only been 4 months and I’m still working through things, but it’s sucked. Yes, it could be worse, but we’re allowed to have moments to be mad or sad about whatever Celiac’s took away.

  5. I’m right with you! There have been times where I just stare into the fridge or pantry and cry but I’m still hungry so it didn’t help me, lol. But a wise person with celiac gave me some very good advice…she said to “Stop looking backwards, those days are gone, concentrate on what you can eat now to stay healthy and get creative. You can do this”! It really helped me tremendously because she is right, I was diagnosed one week before thanksgiving last year and that was very difficult but I got through and you can too! Hang in there it does get better!

  6. I completely understand. This disease sucks. It’s been 5 years and I still wish it would go away so I could stop worrying about my food everyday. The only thing that I can say is that I don’t miss spending my life in the bathroom and nothing tastes better than feeling good. Hang in there. We are right there with you.

  7. Thanks for the support and kind words, it’s nice to not feel so alone in this….I truly appreciate having other people who understand

  8. Trust me I how you feel especially when you go out to lunch and everyone has their big sandwiches or pastas while I sit there with just a salad. Yes I know some restaurants have gf pastas but you never know how they are prepared.

  9. I was diagnosed more than 10 years ago, and I still find myself hating this disease and wishing I could just go out to eat and order, not ask a million questions first.

  10. I’m like that too, Rosemary. On the outside, I try to be upbeat and happy with salad every time I go out, but I do grieve my what-used-to-be life and spontaneous adventures without a care or thought of gluten. I do still remember, though, the horrible pain and state of my health before diagnosis and then feel guilty for feeling sad because my health is better. Crazy, huh?

  11. I’m with you. I already have horrible social anxiety that I was working on…and this has just made it worse. I feel so self conscious, and I don’t want to explain to 10 people why I’m not eating. I don’t want to explain to those same people why I’m not eating the birthday cake. \n\nI attend a weekly meeting where meals are provided. Since my diagnosis, it’s been hit or miss as to whether I could eat. They’ve really tried to accommodate me, but most weeks I’m offered lunch meat and cheese, while everyone else enjoys lasagna or fried chicken. I’ve been glutened almost every Thursday night because of it. The lunch meat apparently isn’t gluten free :/

  12. I get it. It is an isolating feeling! I pack food in my purse and the glove compartment of my car and my suit cases. I am always packing lol. It helps. I also am into researching gluten free products baking and restaurants. That’s my hobby.

  13. Yes I totally understand what you’re going through. You put on a brave face and you know others are going through awful challenges but regardless, it is a loss and it’s a LOT to navigate. I think a big part of it is people just don’t have a clue what celiac is. I know I certainly didn’t. My family is from India so a big part of our diet is amazing breads and I’ve tried all sorts of gluten free options and finally last week I just had a fit and said I JUST want to eat a d$%mn paratha! After that I was ok again! I think we need to get mad or sad or whatever it takes and then move on to managing this new lifestyle.

  14. So you are gluten free. Just accept it like a person accepts being diabetic and ask for a gluten-free menu. I do it all the time. You will find that most waiters are very glad to help you out. Just think – you can have fruit, shrimp, chicken, beef, etc. if you just don’t have gluten.

  15. Have you tried eating Indian, Greek, persian, Afghanni, Vietnamese?

  16. Yes I hate it too, and being a silent coeliac makes me sometimes feel in denial of the whole thing. Bloody hate it.

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