Just diagnosed with Celiac


Hi. I am new to all of this. My two year old was just diagnosed with Celiac. I know I am going to have a lot of questions for you all but right now i want to know what i am feeling is normal. I have been feeling sad and crying a lot. I know this is going to be a big adjustment for my family but I just feel so sad.

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Lyndsey 4 years 16 Answers 516 views 0

Answers ( 16 )

  1. Certainly normal and we’re here! Just know going gluten free is more than doable and everything will be just fine! It’s not always easy, but things could definitely be worse. GF has come a long way.

  2. Hang in there. It feels overwhelming and sad but it gets easier. She is blessed to know so young. I have severe damage from going undiagnosed so long. We are here for you. Feel free to pm me too. Its absolutely normal. Allow yourself time to process it.

  3. (((Hugs))) This diagnose is a hard pill to swallow at first but I promise you it gets easier. I didn’t get properly diagnosed till I was 43. Your child will never have to suffer like a lot of us have had to.

  4. Wow! I found out when I was 41! Your kiddo will thrive!

  5. Such a normal response I think! as far as adjustments goes; I’ll be frank; it depends on how your family eats already… If ya’ll are a family that has lots of processed foods and fast food/breaded items; it will be a huge adjustment; BUT THAT Means you all will be healthier!!!!! If you guys already eat pretty well; the adjustment wont be as much… You will do so good with this!!! Also; familiarize yourself with body care products too; I just found out that my body lotions have wheat gluten in them! ugh!

  6. There are more options now and if you feed your children fresh vegetables, fruits and cook your proteins correctly you ll be fine!

  7. Completely normal! It’s hard to see your baby go through such pain and also such a big lifetime change. My 15 yr old daughter was only diagnosed last year and we both have our days with a lot of crying and feelings of sadness. This group is full of kind people who have offered support, prayers and well wishes to me and my daughter and it makes such a huge difference. Just educate yourself as much as possible. Big hug!!!

  8. It was definitely a big adjustment for my family first my son was diagnosed with celiacs a year ago and I started having some of the same symptoms and I got tested and not too much of a surprise I have it still trying to figure out all the right Foods to eat and trying to fix dinner for the rest of the family and the two of us is a struggle but definitely getting easier by the day

  9. Only problem iv heard from teens and small kids is the pizza… But some of us have mad some gluten free pizza and cauliflower crust. I watched a video today take cauliflower grind it up use egg as a binder fry it in patty form to make grilled cheese

  10. I am right there with you. My 2 year old was diagnosed last Monday. We see GI this week. I completely understand everything you are feeling.

  11. FYI : Against the grain is the GF/celiac safe pizza you can buy . It’s really yummy tasting. So there is a pizza option if you need one.

  12. Thank you all. It helps to have people to talk to who are going through the same thing

  13. I have been getting a lot of recipe books from the library and printing off the recipes I like. Against the grain is great!

  14. Hi Lyndsey Nicole. My son was diagnosed just before his second birthday as well.

  15. I was diagnosed when I was 66. It is not bad when you get used to the gluten free diet. It is worth it to feel better. All will be fine!!! I promise!!

  16. I understand. Both of my children also have to be gluten-free. You are very fortunate that you have found out when this child was so young because the older they get the harder it is to change them over. Also, think about the years of suffering with disease that you are saving this child!

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