Looking for insight amd asvice please.
My 5yr old son was dx 6 months ago with Type 1 Diabetes so in Sept they did a whole pannel of blood tests for other auto immunes. Got the call he tested positive for celiac but that was all they said. Had his appointment with the gastro yesterday and they said that they test the TTG levels, and anyone who tests greater than 4 they will go ahead and do an endoscope to confirm dx. Well my sweet boys TTG levels were over 100. The team of doctors at texas childrens hospital said they’ve never seen levels this high before. As well as some other “alarming numbers” but wouldn’t go into detail until the do the actualy biopsy. So in 2 weeks he goes in for the procedure. I know he will be under anesthesia, which terrifies me from him fasting (remember newly dx T1D so his BG drops randomly and quickly) but also said they will take samples from several parts of his stomache as well as both intestines. I guess I’m just wondering if he will feel any of this once he wake up since they have to take several peices to test, or not at all? And also the on call Fellow mentioned since he is so sever that it’s best to not have any gluton in the house what so ever because even cross contamination can make him sick. My husband and I are all on board with making changes as a whole family, but am worried about where to even begin….