Referred me to an Endo AND a Rheumatologist

Question

I’m 36 years old, and after several years of horrible fatigue, weight gain, joint pain, and just plain yuckiness, I finally demanded extensive bloodwork from my pcp ( I had requested before, but had been outright denied. ‘ you’re just a woman ‘ , ‘ you’re just getting older ‘….etc ?

After getting my results, my TSH was 4.75, TPO was 306. Severely deficient in Vit D ( 10 ) , and a positive RA Factor and positive ANA. Sed rate neg and c reactive protein neg.

My pcp had referred me to an Endo AND a Rheumatologist. I’m a little worried…anyone have bw results similar to this? Hashis and Hypothyroidism runs in my family but not RA or Lupus. That TPO is high enough to be a concern, right? The pcp said shed let rhe Endo do the other screenings ( t4, t3, reverse t3 and t4 ).

Thanks in advance for any advice and for listening to me ramble!

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Elizabeth 3 years 6 Answers 467 views 0

Answers ( 6 )

  1. Low vitamin D is very common in people with Hashimoto's and other autoimmune conditions. Now Foods has a great vitamin D3 (you don't want D2, which is what doctors like to prescribe). I would start at 10,000 IU a day and retest in 3 months. Ideal D levels are between 50-80. TPO of 306 means that you definitely have Hashimoto's. A good medication to take to help lower antibodies is Low Dose Naltrexone. It modulates the immune system and helps to stop the autoimmune attack. It would help with RA and Lupus also. It is an off label use of the drug and needs to be made at a compounding pharmacy and usually not covered by insurance. But it is worth it because once you have one autoimmune disease you are likely to develop others. The thyroid tests you need are TSH, Free T4 (not Total T4), Free T3, and Reverse T3 (there is no reverse T4). You should get these tests every time. Insist on them. You should also insist on you PCP testing you now. Endocrinologist are generally idiots and often want to see a an elevated TSH twice before they will medicate. I have had 2 endocrinologists say that they think a TSH of 10 is ok with Hashimoto's patients. They space out testing by 4 to 6 weeks and, once they give you medication, it takes 4-6 weeks for the medication to work. Then you have to retest to see if you need to change your dose. It all takes forever, so you want to start the process ASAP.

  2. I've got positive ANA & ENA. I have Lupus and Sjogrens as well as Hashimotos

  3. Ugh I had one doctor tell me I'm tired because I have children. Made me so upset! Saw a new doctor and got my answers.

  4. your TSH is high! well its in the normal range but on the higher of the normal range.My dr treated me for the first time for Hashimotos and my TSH was in the 3's. That was back in 2010. Everytime mine lands back in the 3's my dr ups my meds. He actually wanted to treat me in the 2's. If you are symptomatic and the levels are on the higher side of normal, your dr should treat you.

  5. Michelle Mueller Thank you! I have a question. I was prescribed D2 50000 IU once weekly. I took it on 4/6 and 4/13. I also take a soy and gluten free multi that has 1000 IU Vit D ( unspecified ) in it daily. When would it be safe for me to transition to daily D3?

  6. I would start on the 20th, since that is a week after you took the 50,000 IU.

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